J., a long Covid patient from the Midwest, is still suffering extreme symptoms more than a year later — tachycardia, extreme fatigue and other symptoms. Walking the dog around the block, she said, raised her heart rate to 212 beats per minute. Like many other Americans with office jobs, she has been working remotely. Yet […]
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Coronavirus (Covid-19) and disability: Some patients will qualify for aid, Biden says
Commemorating the 31st anniversary of the Americans with Disabilities Act on Monday, July 26, President Biden said some long Covid patients would qualify for disability, a development that long Covid patients have been seeking for months. “‘We are bringing agencies together to make sure Americans with long Covid, who have a disability, have access to […]
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Coronavirus (Covid-19) and disability: What happens if you cannot work?
By VIRGINIA JEFFRIES and JEANNE PINDER After two weeks out sick with Covid, an executive in Oregon returned to work. While she still had a cough, she and her doctor both believed the worst was behind her. “There wasn’t a conversation about Covid lingering or continuing,” she said, speaking on condition of anonymity. “It was […]
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Coronavirus (Covid-19) and disability: How to do it, with a disability specialist who has gone through it herself
Meet Alison Sbrana, a 27-year-old moderator for the support group Body Politic and former care coordinator living in Colorado. Sbrana has myalgic encephalomyelitis/chronic fatigue syndrome, a chronic, disabling condition that often afflicts people after an acute viral infection. Last week, we talked to her via video conference about navigating Covid-19 and applying for disability. Our […]
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Coronavirus (Covid-19) and the vaccine: People under 65 with disabilities and high-risk conditions still fighting for access
John Best, a 31-year-old software engineer from Jersey City, N.J. has no illusions about the danger he faces from Covid-19. “I’m pretty much resigned to the fact that if I get it, I should probably make a will,” he said in a phone interview last week. Best spent the majority of 2020 holed up in […]
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The Long Covid Survival Guide: A review
Nearly three years into the Covid pandemic, people who have long Covid are still looking for answers. Now, finally, they have some. With the publication of “The Long Covid Survival Guide: How to Take Care of Yourself and What Comes Next,” a group of patients have supplied what science and the medical profession could not […]
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What experts wish they knew about Long Covid: Vox
“David Putrino, a rehabilitation and long Covid researcher at the Mount Sinai medical school in New York City, has watched mounting evidence that suggests between 4 and 36 percent of Americans infected with Covid have symptoms lasting at least six months,” Keren Landman wrote about Long Covid experts over at Vox. “It makes him nervous, […]
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Coronavirus (Covid-19) and the long haul: Long Covid advocates and the financial fallout
Two widely known long Covid patient advocates have recently begun to publicize the financial fallout from their illness, starting fund-raising campaigns to support themselves. Both advocates, Amanda Finley and Karyn Bishof, have been ill since spring of 2020. Both have long-term consequences, and both are well-known founders of patient advocacy groups on Facebook — Finley […]
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Long Covid, the invisible public health crisis fueling labor shortages: The Financial Times
“When Katie Lazell-Fairman returned to work after recovering from a Covid-19 infection, she quickly discovered that the virus had taken a much heavier toll on her body than she initially realised,” Delphine Strauss and Jamie Smyth write over at The Financial Times. “’I woke up suddenly feeling incredibly exhausted, dizzy. My heart rate was 135 […]
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Long Covid has many faces: What is it anyway? Some taxonomies of the illness.
It’s been a puzzle since the beginning: What is long Covid anyway? Who has it and who doesn’t? At the beginning of the pandemic, people who didn’t die or get well right away were relegated to some “not really” status – people (including doctors and spouses) refused to believe that they hadn’t gotten well. Friends […]
