Karyn Bishof is a long-hauler from Florida who founded the Facebook group Covid-19 Long-Hauler Advocacy Project. She posted the other day about how she keeps herself organized. I asked her if we could reproduce her post on our blog, with credit, and she said yes. By KARYN BISHOF I’m at 6.5 months post-covid. I was […]
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Parents, advocates angered by reduction in Covid safety measures in school
Children in the United States are about to commence their second, full Covid school year with as much fear and frustration as their first. As the Delta variant causes cases to surge globally and childhood cases to rise, districts have dropped their precautions, and some parents are frightened, angry and deeply conflicted over how to […]
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Coronavirus (Covid-19) and the long haul: Long Covid advocates and the financial fallout
Two widely known long Covid patient advocates have recently begun to publicize the financial fallout from their illness, starting fund-raising campaigns to support themselves. Both advocates, Amanda Finley and Karyn Bishof, have been ill since spring of 2020. Both have long-term consequences, and both are well-known founders of patient advocacy groups on Facebook — Finley […]
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The Long Covid Survival Guide: A review
Nearly three years into the Covid pandemic, people who have long Covid are still looking for answers. Now, finally, they have some. With the publication of “The Long Covid Survival Guide: How to Take Care of Yourself and What Comes Next,” a group of patients have supplied what science and the medical profession could not […]
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Coronavirus (Covid-19) and the doctors: Where should you go for treatment and advice?
Where should you go to get treated for Covid-19? Or to get advice? Well, it all depends. Some patients, of course, will go to their regular doctor, or to a specialist, or to the emergency room. But increasingly, patients who have long term courses of the illness — they call themselves “long-haulers” — are finding […]
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Coronavirus (Covid-19) and mental health: It’s not just the body that’s affected, but also the mind
By MOLLY TAFT and VIRGINIA JEFFRIES It’s clear that the pandemic is wreaking havoc on Americans’ mental health: a recent study found that adults in the US were reporting symptoms of depression at three times the rate as before the pandemic. But some Covid patients, especially those who have been sick for months, say that […]
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Coronavirus (Covid-19) and disability: What happens if you cannot work?
By VIRGINIA JEFFRIES and JEANNE PINDER After two weeks out sick with Covid, an executive in Oregon returned to work. While she still had a cough, she and her doctor both believed the worst was behind her. “There wasn’t a conversation about Covid lingering or continuing,” she said, speaking on condition of anonymity. “It was […]
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Coronavirus (Covid-19) and workers’ compensation: When your employer won’t pay up
Three days after treating a Covid-positive patient in April, Monica Burgos-Wilkins awoke in the middle of the night with a fever and severe muscle pain. Within 24 hours, Burgos-Wilkins, a Waterbury, Conn., hemodialysis nurse, had lost her sense of taste and smell and tested positive for the coronavirus herself. After that, she said, her illness […]
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Coronavirus (Covid-19) and disability: A year later, and millions of cases later, patients struggle for disability
J., a long Covid patient from the Midwest, is still suffering extreme symptoms more than a year later — tachycardia, extreme fatigue and other symptoms. Walking the dog around the block, she said, raised her heart rate to 212 beats per minute. Like many other Americans with office jobs, she has been working remotely. Yet […]
